General Practice Data for Planning and Research (GPDPR)
PATIENT REMINDER: Data from your medical record will be collected by NHS Digital and shared from 1st July 2021. Please see below for further information including how to opt out.
The data held in a GP medical records of patients is used every day to support health and care planning and research in England, helping to find better treatments and improve patient outcomes for everyone. NHS Digital has developed a new way to collect this data, called the General Practice Data for Planning and Research data collection.
The new data collection reduces burden on GP practices, allowing doctors and other staff to focus on patient care.
What data is shared
Data may be shared from the GP medical records about:
- any living patient registered at a GP practice in England when the collection started - this includes children and adults
- any patient who died after the specified deadline, currently estimated to be September 2021 and was previously registered at a GP practice in England when the data collection started
NHS Digital will not collect patients’ names or addresses. Any other data that could directly identify patients (such as NHS Number, date of birth, full postcode) is replaced with unique codes which are produced by de-identification software before the data is shared with NHS Digital.
This process is called pseudonymisation and means that patients will not be identified directly in the data. NHS Digital will be able to use the software to convert the unique codes back to data that could directly identify patients in certain circumstances, and where there is a valid legal reason.
We will collect structured and coded data from patient medical records.
If you don’t want your identifiable patient data to be shared for purposes except for your own care, you can opt-out by registering a Type 1 Opt-out or a National Data Opt-out, or both. Your individual care will not be affected if you opt-out using either option.
Type 1 Opt-out (opting out of NHS Digital collecting your data)
NHS Digital will not collect data from GP practices about patients who have registered a Type 1 Opt-out with their practice.
Type 1 Opt Out Form- To opt out using Type 1 opt-out please download and complete this form and submit to the surgery you can do this by emailing us at firstname.lastname@example.org
Collection of data is scheduled to start September 2021 so if you do not want your data to be shared by NHS Digital please register your Type 1 Opt-out with your GP practice.
If you register a Type 1 Opt-out after this collection has started, no more of your data will be shared. However what NHS Digital will still hold the patient data which was collected prior to opt out/before you registered the Type 1 Opt-out.
National Data Opt-out
To complete an online National Data Opt out click this link.
Young adults from the age of 13 can set and change their own national data opt-out.
Click Here To Find Out More including the differences between Type 1 Opt Out Form and National Data Opt-out and How to Opt Out